A Montgomery County community is working to help a local family battling a devastating disease.
Four weeks ago, Becky Vivian says she found out her seven-year-old son, Eli, was diagnosed with Metachromatic Leukodystrophy, a genetic disorder that affects the nerves and muscles, organs and behavior.
Shortly after getting news about Eli, Vivian says she learned a week ago that her daughter, four-year-old Ella, was also diagnosed.
Ella has not yet shown any symptoms.
The family has two older sons who have not been diagnosed.
Currently, there is no cure for Metachromatic Leukodystrophy.
After starting a Facebook page, Vivivan says she started getting messages from people all over the world.
From Facebook to Montgomery County, an entire community has rallied around the Vivian family.
They've started their own support group with t-shirts for Eli and Ella's "prayer warriors."
The family says they've already sold 400 of them - all part of their mission to save their children.
Thursday, May 23 2013 5:55 AM EDT2013-05-23 09:55:21 GMT
Today's weather? Cloudy, muggy, and eventually, stormy. If you get a strong to severe storm, it would probably be lat afternoon and evening. Highs in the upper 70s. Some of the storms will produce locally heavy rain and gusty winds.
This system is from the same cold front that caused the midwest tornadoes. It will also usher in cooler air for the holiday weekend.
Wednesday, May 22 2013 7:39 PM EDT2013-05-22 23:39:12 GMT
The volunteer effort in Oklahoma is underway. Groups from across the country have hit the road, delivering hot meals to anyone in need. One local organization is doing what they can to help the victims
The volunteer effort in Oklahoma is underway. Groups from across the country have hit the road, delivering hot meals to anyone in need. One local organization is doing what they can to help the victims
Wednesday, May 22 2013 5:04 PM EDT2013-05-22 21:04:25 GMT
Veteran narcotics officer Jeff Walker was part of some of Philadelphia's most celebrated drug raids including a huge marijuana bust that netted $1.5 million dollars in pot. Now Walker finds himself on
Veteran narcotics officer Jeff Walker was part of some of Philadelphia's most celebrated drug raids including a huge marijuana bust that netted $1.5 million dollars in pot. Now Walker finds himself on
Wednesday, May 22 2013 4:59 PM EDT2013-05-22 20:59:02 GMT
The Philadelphia parents who admitted to praying for their sick baby instead of getting him medical attention are charged with third-degree murder. Herbert and Catherine Schaible's seven-month-old son,
The Philadelphia parents who admitted to praying for their sick baby instead of getting him medical attention are charged with third-degree murder. Herbert and Catherine Schaible's seven-month-old son,
Wednesday, May 22 2013 1:30 PM EDT2013-05-22 17:30:01 GMT
New Jersey says it's cracking down on bars and restaurants amid claims that they're substituting premium alcoholic beverage brands with "well brand spirits," unbeknownst to customers.
New Jersey says it's cracking down on bars and restaurants amid claims that they're substituting premium alcoholic beverage brands with "well brand spirits," unbeknownst to customers.
Wednesday, May 22 2013 1:09 PM EDT2013-05-22 17:09:44 GMT
Police say they're looking for the public's help to find a man seen on surveillance video firing an AK-47 into a car and a gentleman's club earlier this month in Southwest Philadelphia.
Police say they're looking for the public's help to find a man seen on surveillance video firing an AK-47 into a car and a gentleman's club earlier this month in Southwest Philadelphia.
Wednesday, May 22 2013 12:49 PM EDT2013-05-22 16:49:38 GMT
Wow! Doylestown really rolled out the welcome mat (and a real red carpet) this morning when Good Day's Jenn Frederick came to town!We chose Doylestown as one of the places to visit in our series called
Wow! Doylestown really rolled out the welcome mat (and a real red carpet) this morning when Good Day's Jenn Frederick came to town!We chose Doylestown as one of the places to visit in our series called
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Eli, 7, was diagnosed with Metachromatic Leukodystrophy, a genetic disorder that affects the nerves and muscles, organs and behavior.
