Students in Montgomery County walked to raise some much needed funds for a family who has two kids diagnosed with a rare and fatal disease.
Not long ago, the Vivian family learned their son, Eli, had Metachromatic Leukodystrophy (MLD), a genetic disorder that affects the nerves and muscles, organs and behavior.
Shortly after getting the news about Eli, the family learned their four-year-old daughter, Ella, was diagnosed with the same disease.
The two kids are now in the fight of their young lives.
The family says there is one piece of hope. A hospital study in Milan, Italy is trying to treat kids with MLD. The family says Eli might be too old for the treatment, but his sister might be eligible.
The family still is not sure if either child will get a slot in the Italian study.
Students in Oaks Wednesday morning took to the pavement to show their support during a walk to raise money.
Organizers say most of the money raised Wednesday will go to the Vivian family.
Sunday, June 9 2013 3:36 PM EDT2013-06-09 19:36:00 GMT
The U.S. Open is getting ready to kick off just a few days from not in Ardmore. Before you head to the green, you have to see the latest in Merion fashion!
FOX29's Jenn Frederick has an inside look at everything you will need to be a well-dressed on-looker at the 2013 U.S. Open.
Thursday, June 6 2013 12:28 PM EDT2013-06-06 16:28:48 GMT
For this edition of Jenny On Your Block, Fox 29's Jenn Frederick returned to Bucks County. Quakertown pulled out all the stops and you will not be dissapointed!Quakertown was amazing!THANK YOU!
For this edition of Jenny On Your Block, Fox 29's Jenn Frederick returned to Bucks County. Quakertown pulled out all the stops and you will not be dissapointed!Quakertown was amazing!THANK YOU!
Monday, June 17 2013 10:45 PM EDT2013-06-18 02:45:53 GMT
An unspeakable crime in Southwest Philadelphia. The details are very disturbing. Police say a man who is a paraplegic has been stabbed and his genitals severed by another man, after the two got into an
An unspeakable crime in Southwest Philadelphia. The details are very disturbing. Police say a man who is a paraplegic has been stabbed and his genitals severed by another man, after the two got into an
Monday, June 17 2013 10:41 PM EDT2013-06-18 02:41:15 GMT
The Rolling Stones will perform in Philadelphia on Tuesday night at the Wells Fargo Center. Fans will undoubtedly buy memorabilia to remember the event. One item being sold at an auction will surely catch
The Rolling Stones will perform in Philadelphia on Tuesday night at the Wells Fargo Center. Fans will undoubtedly buy memorabilia to remember the event. One item being sold at an auction will surely catch
Monday, June 17 2013 10:25 PM EDT2013-06-18 02:25:38 GMT
An armed deli robbery is caught on camera. Two brazen gunmen held up the store owner with the man's kids right nearby. It's scary enough having armed gunmen storm your business.
An armed deli robbery is caught on camera. Two brazen gunmen held up the store owner with the man's kids right nearby.It's scary enough having armed gunmen storm your business.
Monday, June 17 2013 10:21 PM EDT2013-06-18 02:21:46 GMT
In Chester County, there was damage caused by severe storms as they ripped through the area this afternoon. It did not take long but it did quite a bit of damage.
In Chester County, there was damage caused by severe storms as they ripped through the area this afternoon. It did not take long but it did quite a bit of damage.
Monday, June 17 2013 8:44 PM EDT2013-06-18 00:44:29 GMT
South Philly neighborhood parents are so worried about cars speeding down their street while kids are at play that they installed their own speed bumps.
South Philly neighborhood parents are so worried about cars speeding down their street while kids are at play that they installed their own speed bumps.
Monday, June 17 2013 6:55 PM EDT2013-06-17 22:55:01 GMT
New Jersey is considering changing the requirements to be a teacher in the Garden State. A proposal would require prospective teachers to have at least a "B" average in college before they get certified.
New Jersey is considering changing the requirements to be a teacher in the Garden State. A proposal would require prospective teachers to have at least a "B" average in college before they get certified.
Monday, June 17 2013 6:51 PM EDT2013-06-17 22:51:37 GMT
Parents and Philadelphia staff members are going on a hunger strike. Hunger strikers will camp outside Governor Tom Corbett's office in Philadelphia until the system gets additional funding.
Parents and Philadelphia staff members are going on a hunger strike. Hunger strikers will camp outside Governor Tom Corbett's office in Philadelphia until the system gets additional funding.
