Fundraiser for 2 Chester Co Kids With Rare Disease
Posted:
Updated:
A Chester county community comes together, to
help two children battling a rare disease.
Eli and Ella Vivian suffer from Metachromatic
Leukodystrophy, a disease that attacks the brain, nerves, and muscles.
Their parents held a fundraiser Saturday
night in Phoenixville, PA. They're trying to raise enough money to fly their
family out to Milan, Italy, where doctors are conducting a gene therapy study.
Only a certain number of children are accepted into the study, so Becky and
Steve Vivian hope their kids make the cut.
Family and friends got together and formed
"Eli and Ella's Prayer Warriors". They raise faith, awareness, and money for
the children's treatment.
If you want to help raise money for Eli and
Ella's Prayer Warriors, you can find information on their facebook page.
Wednesday, June 19 2013 1:52 PM EDT2013-06-19 17:52:58 GMT
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AP PHOTO
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