Fundraiser for 2 Chester Co Kids With Rare Disease - Philadelphia News, Weather and Sports from WTXF FOX 29

Fundraiser for 2 Chester Co Kids With Rare Disease

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A Chester county community comes together, to help two children battling a rare disease.

 

Eli and Ella Vivian suffer from Metachromatic Leukodystrophy, a disease that attacks the brain, nerves, and muscles.

 

Their parents held a fundraiser Saturday night in Phoenixville, PA. They're trying to raise enough money to fly their family out to Milan, Italy, where doctors are conducting a gene therapy study. Only a certain number of children are accepted into the study, so Becky and Steve Vivian hope their kids make the cut.

 

Family and friends got together and formed "Eli and Ella's Prayer Warriors". They raise faith, awareness, and money for the children's treatment.

 

If you want to help raise money for Eli and Ella's Prayer Warriors, you can find information on their facebook page.

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