Man walks from Virginia to California to raise money for NFDF - FOX 29 News Philadelphia | WTXF-TV

Man walks from Virginia to California to raise money for NFDF

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A young man with a rare disease is walking across the country from the east coast to the west coast. He is walking to raise awareness about the disease and money to cure it. We caught up with him this morning.

Courtnay Midkiff is on quite a journey. At first accompanied by friends, now he's walking by himself. From the east coast to the west coast, meeting people along the way. And talking about Fabry disease, something he was born with.

"I'm 23 years old and I have it, my brother has it, my mom has it. Until this trip I have never met another patient other than my family," says Courtnay.

It's a rare disease. Only about 2,500 people have it and it can be fatal. It's caused by a deficiency of an enzyme that clears fatty substances from the body. It can cause heart attacks and stroke and kidney failure.

Meeting people with the disease has made Courtnay feel like he is not alone.

"I'm pretty positive about it. I was born with it, there is nothing I can do about it and I do the stuff I want to do."

One of those things he wants to do is raise money for Fabry disease, hoping doctors can find a cure in his lifetime.

In five months, Courtnay has raised over $10,000.

On Aug. 6 at 5:45 p.m. pre-game ceremony, he will be recognized by the Arizona Diamondbacks for his walk across the country to raise Fabry disease awareness.

The Fabrys Walkabout -

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