Teen With Rare Disease Gets Own 'Dream' Room - FOX 29 News Philadelphia | WTXF-TV

Teen With Rare Disease Gets Own 'Dream' Room

Posted: Updated:
Julian Julian

A teen, battling a rare disease, just got a chance to have something he's never had before, his own room. With the help of a few good Samaritans, they're making that dream come true.

The look on their faces say it all. The Sweet Dreams Foundation created a stunning dream room for Julian, a teen with a deadly genetic disease called X-linked adrenoleukodystrophy.

"This morning I came in bright an early before everyone else got here and brought him in the room, sat him down on the carpet and let him just feel everything that was going on in here," says Jenn Richardson, the Sweet Dreams Foundation Founder.

Murals pop from the wall, there's a gate to heaven design that Julian can feel. And the clouds on his ceiling light up.

"You can load a different video and you can change the hue and the color," says a designer as he shows us the control tablet.

The designers say Julian's room was an easy piece to do because he knew exactly what he wanted.

"His dream was heaven and he also loves animals and stuff," says Amy Bagshaw, the muralist.

Many people poured time and money to make Julian's dream room vision a reality. Some of them have never even taken time to visualize their own paradise. Jenn, lives with mom and dad.

"It's actually been a great thing, because realizing how important it is not having your own space," Jenn quips. "But so grateful my parents have let me move in so I can focus on Sweet Dreams."

It'll be a while before Jenn sees her own dream room, and now, there's a chance Julian will never see his. He lost his eyesight just last night, hours before he was supposed to see his new safe haven.

Julian's room came courtesy of the Sweet Dreams Foundation. The California-based charity has done this same thing for several other children diagnosed with life-threatening illnesses.

  • Local NewsMore>>

  • Geno's Holds Fundraiser For Paralyzed Man

    Geno's Holds Fundraiser For Paralyzed Man

    Sunday, September 14 2014 11:25 PM EDT2014-09-15 03:25:33 GMT
    A  man on the way to his job in 2012 was involved in an automobile accident that left him paralyzed from the chest down. The accident changed his life forever, but he says that he plans on overcoming the challenges that he now faces.
    A  man on the way to his job in 2012 was involved in an automobile accident that left him paralyzed from the chest down. The accident changed his life forever, but he says that he plans on overcoming the challenges that he now faces.
  • Police: Gay Couple Beaten In Center City

    Police: Gay Couple Beaten In Center City

    Sunday, September 14 2014 10:32 PM EDT2014-09-15 02:32:24 GMT
    Investigators say a gay couple was walking in Center City when they were stopped by a group of people and brutally beaten on the corner of 16th and Chancellor. Both of the victims are now recovering from nasty injuries.Friends and witnesses say there is no question the men were targeted because they are gay."They shattered his cheek bones on both sides and his jaw,” said friend of the victims Caryn Kunkle.Caryn describes the injuries to her two dear friends who FOX 29 is not identifying.The c...
    Investigators say a gay couple was walking in Center City when they were stopped by a group of people and brutally beaten on the corner of 16th and Chancellor. Both of the victims are now recovering from nasty injuries.Friends and witnesses say there is no question the men were targeted because they are gay."They shattered his cheek bones on both sides and his jaw,” said friend of the victims Caryn Kunkle.Caryn describes the injuries to her two dear friends who FOX 29 is not identifying.The c...
  • Authorities Continue To Investigate State Police Barracks Shooting

    Authorities Continue To Investigate State Police Barracks Shooting

    Sunday, September 14 2014 10:14 PM EDT2014-09-15 02:14:19 GMT

    State police say one trooper is dead and another is injured after a shooting at a state police barracks in northeastern Pennsylvania. 

    State police say one trooper is dead and another is injured after a shooting at a state police barracks in northeastern Pennsylvania. 

Powered by WorldNow

WTXF-TV
330 Market Street
Philadelphia, PA 19106-2796

Phone: (215) 925-2929
Fax: (215) 982-5494

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | New Terms of Service What's new | Ad Choices